Thursday, February 5, 2009
James' health
I am so frustrated. I don't know what else we can do for poor James. His Prednizone makes him moody, he's in pain, he's miserable and the doctor keeps telling him just eat a low salt diet! He is on a practically NO salt diet. He eats rice, vegtables, fruits, malt o meal, occationally a piece of meat cut up in his stir fry... meat we get from the butcher shop so it isnt loaded with sodium. He wont eat bread or anything that says it has 4% or sodium or more. He watches how much of it he consumes a day. But then he gets pissed because he has doubled and tripled his Lasix for the swelling and it still wont go down. The doctor probably thinks he's lying about what he's eating. I know.
He has a real bad cough.. probably bronchitis again. His mood is terrible. He wants to be taken out back and shot. He's so ready to die and get it over with. He even told his Nephrologist his mental health was deterioating and the dontor said, "that's the prednizone". That's nice DO something. Give him an anti depressant or something. If you can't make the swelling go down. He also told James," well get the Cyclosporine". Which is the one that is $205/month and he/we havent been able to get for over 5 months. He had it the month Kenny bought it and one other month. But the child support takes so much out of his check he barely has enough left over for gas and cigarettes, and the medicine he is taking. He's not even his car payment or insurance. He doesnt have a bank account anymore. He buys vegtables and fruit every time he gets paid along with rice and Maltomeal. Carroll has learned a lot about cooking low sodium and we change it to no sodium so he is actually getting real real low sodium.
I called the nurse line today and worked out with them the amount of grams of protein he shold be eating since the doctor wont be specific. He says his Bun and Cretinin levels are not that bad and the kidneys arent getting any worse right now. But this DAMN Nephrotic syndrome is gonna kill him!
I finally took some pictures of his legs to show you. I will be researching some more and sending the pics to doctors online if I have to.
I gotta go.
He has a real bad cough.. probably bronchitis again. His mood is terrible. He wants to be taken out back and shot. He's so ready to die and get it over with. He even told his Nephrologist his mental health was deterioating and the dontor said, "that's the prednizone". That's nice DO something. Give him an anti depressant or something. If you can't make the swelling go down. He also told James," well get the Cyclosporine". Which is the one that is $205/month and he/we havent been able to get for over 5 months. He had it the month Kenny bought it and one other month. But the child support takes so much out of his check he barely has enough left over for gas and cigarettes, and the medicine he is taking. He's not even his car payment or insurance. He doesnt have a bank account anymore. He buys vegtables and fruit every time he gets paid along with rice and Maltomeal. Carroll has learned a lot about cooking low sodium and we change it to no sodium so he is actually getting real real low sodium.
I called the nurse line today and worked out with them the amount of grams of protein he shold be eating since the doctor wont be specific. He says his Bun and Cretinin levels are not that bad and the kidneys arent getting any worse right now. But this DAMN Nephrotic syndrome is gonna kill him!
I finally took some pictures of his legs to show you. I will be researching some more and sending the pics to doctors online if I have to.
I gotta go.
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